These organisations provide specific information and support for a parent or parents who are expecting a child with a fetal abnormality diagnosis.
If the diagnosis your patient has been given is not listed here, please get in contact with us and we will put you in touch with an organisation or family that specialises in supporting parents facing that particular diagnosis.
For general support during pregnancy see our Crisis Pregnancy Support page.
Down Syndrome
Saving Downs
Saving Downs are an advocacy group for people with Down Syndrome. If your patient is considering screening or is facing a diagnosis, there are regional representatives throughout the country who are available to meet with your patient.
www.savingdowns.com
Saving Downs ‘Facing a diagnosis?’ page
Contact Saving Downs
New Zealand Down Syndrome Association
The New Zealand Down Syndrome Association is a family/whanau driven organisation for people whose lives have been changed by Down Syndrome. The NZDSA is a support organisation for families. They can put your patient in touch with a family with a member with Down Syndrome.
Parent to Parent
Matua ki te Matua (Parent to Parent) is a support and information network for parents of children with special needs. Parent to Parent seeks to support, educate and empower families who have a child or family member with disabilities, health impairments or special needs.
Spina Bifida
Spina Bifida Association New Zealand
Spina Bifida Association New Zealand are a non-profit organisation dedicated to supporting and encouraging parents expecting a baby diagnosed with Spina Bifida and parents of children, young adults and adults living with Spina Bifida.
Email: [email protected]
Spina Bifida Association New Zealand Facebook